I started this year’s Creative Jump Start intending to do the challenges daily, as I have done it previous years. After the first week I gave that idea up, as life is too busy, so I’ll do them through the year as I have time. It’s a pity, because I love starting the year with a creative rush, but other things are taking priority.
Tony’s health has deteriorated and we’ve had a lot of trouble getting his pain under control. We got an amazing Nurse Practitioner and Doctor last week, who really listened to all that’s going on, and made significant changes to his pain meds while he stayed in overnight.
On Tuesday we had a visit from Breeda, a Hospice nurse. She checked over the Advanced Care Directive and witnessed it, sorted out some issues with his meds, & gave us advice about nausea etc. It all feels much more controlled and doable now.
Tony and I know, from 14 years of nursing mum, that the carer needs regular breaks if they’re to keep going. Today I’m heading down to stay with Alan for 10 days. Tony’s brother Roger will be in charge some of the time & Tony will be in Te Mahana for respite care for 5 nights. That’s not an easy thing for him to accept and I’m proud of him for agreeing to it.
For my part, I’ll be sleeping a lot, napping in the sun, patting the farm dogs, riding the quad bike, eating out with Penny and visiting arty things with her, playing with my art supplies … just generally resting and recharging,
Sure life is hard at the moment, and will probably get harder, but Tony and I are grateful for 29 years together. I’m grateful for good friends, a supportive workplace and boss, having my sister Ailsa and his brother Roger, my bff Sandra, and his kids to support us. Whatever comes our way, we’ll meet it head on, like we always do. Love remains.