Still recovering

Last time I blogged I was at the end of two weeks at home, recuperating. I’ve been back at work 2 weeks, doing 4 days a week – by the end of Thursday I’m pretty worn out.

I went to see Mr Farrynt, the surgeon last week to get the MRI results. Inconclusive, because my internal plumbing is unusual even for a gastric bypass patient due to justing the surgery to allow for damage from a botched hysterectomy in my late 20s. My Farrynt wants to do exploratory surgery in the next 4-6 weeks and fix whatever he finds at the time. It’ll start off keyhole but probably end up open surgery. I wanted to delay it but he feels it will obstruct again and then he’ll have to operate when I’m really sick, as opposed to just not 100% well…

 The only thing to sort before hand is an urgent referral to ENT. My voice is still hoarse and weak; the surgeon is concerned my airway might be compromised so needs that fixed before they operate.

 The other thing I’m dealing with is that, after intubation & ICU etc, my hair has thinned even more and become sparser. We’ve cut it very short and changed the shape – it’s better but I’ll be very pleased when it recovers. I’ve coloured it for the first time in many years because I just looked so pale and unwell for a while there.

I’m down to 76.8kg, only 1.8kg off my bypass surgeon’s goal for me. I talked to Mr Farrynt and his side kick Amanda about getting down to 70kg as that would make me a standard size 14 (I think). No way! They are happy for me to get to 75kg but not lose any more than that, as they’re cncerned about my general health with all that’s gone on. So I need to learn to eat a little bit more to stop the loss. I could never have imagined that would be a problem for me! I’ll be talking to my dietician in a week anyway, so that’s good timing.

 As most of you know, I am always fiddling with art and craft, blogging etc. Until yesterday, I hadn’t touched my craft stuff since 8 April, which is a LONG time for me. Yesterday I finally put some gesso on a page and did a quick layout. I don’t have a lot of energy yet, but it was good to get messy.

 

 

Hospital dramas

It’s more than a month since I blogged or did any art – here’s why.

I’d been doing really well, but suddenly developed severe stomach pain about 5pm, just as Tony got home from Wanganui. By 6pm it was so bad we called the ambulance. Millie took me to Hawera; the Dr suspected a twisted bowel so had me transported to Base on Sunday morning. The surgeon, Mr Hadawi, spoke to Atul Dhabuwalla who thought a piece of bowel might have got trapped in a gap from the surgery, and they arranged for a gastroscopy on Monday 10th May.

Mr Hadawi did the gastroscopy late morning under heavy sedation. Unfortunately the suction unit wasn’t working properly and the nurse didn’t realise. Because of the blockage I had a lot of bile in my stomach and vomited during the procedure. Due to the suction unit not working I got a lot of bile in my lungs. I was went back to the ward but, bizarrely, there’s no handover after gastroscopy so the ward staff were not told what had happened.

My nurse, Siji, noticed my heart rate increasing and oxygen levels dropping; she was keeping a close eye on me because she couldn’t understand why I was deteriorating. Mid to late afternoon the surgeon came to get me for acute bowel surgery just as I started to really go downhill. He kept asking if I felt ok, and I can remember saying yes – tired but ok. He called the peri-arrest team (used when someone is about to have, or just had, a cardiac arrest) and I could hear them talking about tachycardia, intubation, and bag masking. Between Mum’s dramas, and Tony’s ambulance work, I knew exactly what was happening but was so unwell it wasn’t really scary. Just as I was about to say I suddenly didn’t feel well at all, they took over my breathing. Talking to the surgeon later, he said if you’re young and fit your body compensates until suddenly it can’t anymore, which if the point I had reached.

Poor Tony had turned up just as all this was happening. The Dr explained what was happening but he wasn’t allowed to see me. Ailsa and Jim were in New York and the hospital phoned her at 6am to tell her I was in ICU. She rang me most mornings and kept in touch by text throughout.

I woke up the next day in ICU after they took the tube out, and spent the next four days in either ICU or HDU recuperating from severe aspiration pneumonia. The day after they extubated they did x-rays, fluoroscope and CT scans of the bowel but none of it was conclusive. Because of the trauma to my lungs the surgeons felt I couldn’t have surgery for another month or more anyway unless they were forced into it. I spent two weeks in hospital in total, with the Drs saying it would probably take 6 weeks to fully recover.

I’ve had another two weeks at home recovering. I’ve been incredibly tired, am walking slowly, and have very little voice. The Drs think it’s just a reaction to pneumonia and intubation but if it isn’t right after a month they’ll investigate further. I’ve also had a MRI scan at Base and have an appointment with Mr Farrynt on the 18th May to get the results and plan any surgery.

Re the medical mishap that led to the pneumonia; the hospital are investigating all aspects and made some changes straight away.